CareMirror: Bringing Caregiver Wellbeing into the Dementia Care Ecosystem

2026-09-15

AI Summary

研究构建了CareMirror系统，通过照护者和临床医生界面连接，解决痴呆症照护者福祉问题，采用半结构化访谈探讨其期望与担忧。

Abstract

Family caregivers of people living with dementia shoulder emotional and practical responsibilities, yet their own wellbeing often remains peripheral to dementia care. We built CareMirror, an envisioned caregiver wellbeing ecosystem with interconnected caregiver- and clinician-facing interfaces for longitudinal reflection, personalized support, and caregiver-controlled sharing with clinical care. We conducted semi-structured interviews with 14 caregivers, using CareMirror as a design probe to examine how they perceived this ecosystem and what expectations, concerns, and boundaries emerged around clinical connection. Caregivers valued attention to their wellbeing, longitudinal awareness, context-sensitive support, and clinical visibility when it could lead to meaningful follow-up. However, repeated reflection could become burdensome or emotionally difficult, automatic clinical sharing could inhibit candid disclosure, and participants wanted control over what information entered clinical care. They also expected AI to support reflection and communication without replacing caregiver voice or clinician judgment. We contribute design considerations for proactive, clinically connected caregiver wellbeing support.

Problem

• caregiver wellbeing
• dementia care
• ecosystem

Innovation

• Caregiver Wellbeing Ecosystem
• Interconnected Interfaces
• Personalized Support
• Clinical Connection
• AI-Assisted Reflection